Pregnancy with Chronic Illness, Uncategorized

Thank You…

me and baby

     The steroid therapy helped tremendously with the flare I was having. While I continue to battle the residual symptoms of this disease, I feel fairly human again and have had the energy to be Mommy and enjoy my sweet boy. My neuro team is helping me with the usual….daily headaches, fatigue, spasms…you know how it goes. I’m so grateful for incredible doctors.

Baby Jax is getting growing and just the sweetest. While he does continue to have some neuro-deficits, we feel confident he will outgrow them. Every time I bat an eye, he seems to get bigger. He might be my 5th but he may as well be my 1st. It’s amazing how God allows us the capacity in our hearts to make room to love every child just as fiercely.

I want to thank you all for joining me through my journey with pregnancy. My hope is that by sharing my experiences with pregnancy with an auto-immune/neurological disease will help other women to feel encouraged and armed with someone else’s trials to identify with. This was the most challenging pregnancy I’ve endured but I wouldn’t trade it for the world. I’ve learned so much about myself and the miracles of creating beautiful life from a broken body. I was so encouraged by your thoughts, comments, and prayers. I look forward to sharing our next chapter together.
Jax loves his #TeethingPacifierClip ! It’s easy for him to grab, clips right onto his shirt or bib, and it’s perfect for him to sooth his gums on 💙


Pregnancy with Chronic Illness

Week 2…

baby jax 2 weeks

My body has gone totally off the wall. Every nerve ending in my body feels exposed, I’m running fevers, and I feel terrible. Thankfully I was able to get in to my neurologist quickly so she could try to get this wonky body straightened out. Since our bodies are neuro-protected when we are pregnant, it’s not uncommon for them to be totally out of whack after the baby comes but Good Lord, this has tested my limits physically and emotionally. I’ve started high dose steroids (ugh…I super hate taking steroids) but at this point my doctor could have told me I needed to roll around in pig crap for a week straight to feel better and I would have happily obliged. The headaches that I didn’t have for the last 9 months have come back to visit me daily. They are super unwelcomed but just like that relative that comes unannounced and overstays her welcome, my headaches have moved in, unpacked their bags, and brought their feral cat with them.

My ridiculous body aside, Baby Jax is doing well. He is still being monitored for his tremors with weekly doctors visits but he’s gaining weight, eating like a champ (I swear I breastfeed this kiddo 27 hours a day), and is otherwise very healthy. I worry, like every new mom, about every little thing. Is he pooping normal? Am I producing enough breastmilk? Is that sound he’s making OK? You would think he was my 1st and not my 5th, but with all of the medications I take, and the worry I have that they will affect him adversely, I’m a bit of a hot mess with him. His awesome pediatrician assures me that he is doing well, though, and that he is right on track. He is super strong and just the sweetest baby. Hopefully by next week, I’ll be feeling more human and his tremors will slow down a bit more.

One thing I know for sure is that we are so in love with this tiny human…and it has all been so worth it!